Sunday, March 23, 2025
God's Timing is Always Perfect
Today was another good day--I got to see my honey! He got here about 9 and helped me shower--showers always feel so good! And I got to be unhooked from everything for a bit which was super nice because my tele-box hates me lol--it's constantly beeping about something and 90% of the time it's not right lol. The other day when I went for my morning walk I had to come all the way back up to the unit twice because it was alarming SUPER loud because it thought my heart rate was 142 when it was only 90....they put a new battery in it and it did it again, so they just called the people that monitor the alarms and I think they just turned the alarms off for a bit so I could actually get my walk in. When you move your finger that has the pulse ox monitor on it (it monitors your oxygen level) it thinks my oxygen is plummeting anywhere from mid 70's-80's so once it gets below 85 it starts alarming super loud and that is not fun for my head. Since the Trigeminal Neuralgia (TN) diagnosis, I've been dealing with more random head pain and then you combine that with my sinuses being plugged up completely (my CT scan showed my ethmoid and sphenoid cavities are opaque which means they are completely packed with infection and it's time to get them cleaned out)....I'll find out tomorrow whether or not we'll be doing that this Wednesday while I'm inpatient, or if they want to wait until after my other surgery and do it outpatient another time...regardless I'm racking up the surgeries that need to happen, it's just a matter of timing. One of the cavities is right behind my eye and the other is near my ear...here's a picture I found online that shows the different cavities:
Jord and I livestreamed church and both of us kind of closed our eyes and rested while we listened...he's exhausted and hurting from moving yesterday and I'm exhausted from not getting a lot of sleep last night after my super fun-filled day yesterday. Definitely a turtle day today, but we got Subway and chatted. He got to meet Justin (the guy that cleans my room) and talk basketball and video games...it's funny cause one day he came in wearing Nike shoes that said "Air" on them and I said, "Are those Air Jordan's?" and He said, "No! Scottie Pippen!" Whoops lol! Jord started talking about how fun the Chicago Bulls were to watch and he was like, "I didn't get to watch them because I was born in 1996"...yep we are that old now lol. Age doesn't bother me cause I'm just that much closer to heaven, but it's just weird being in my 40's now and we still hang out with the "20 somethings" at church a lot and it's just weird to think they are 20 years younger than us and theoretically we could have a 19 year old if we had been able to have kids...time is a crazy thing!.......We got a few pictures and then I walked him downstairs to say goodbye because he needs to get back to Blue--she was already stressed with us packing up the house and me being down here and then after moving yesterday and being in a new house she is struggling. We took one last picture in the hallway and then I gave him a goodbye kiss and was starting to get misty-eyed when an older gentleman who was sitting on a bench in the hallway stopped me and asked if I had had heart surgery because he recognized the tele-box. Turns out his wife, Debra (guessing on spelling!) is having heart surgery tomorrow and he had been a match for her 26 years ago and was able to give her one of his kidneys. I asked what his name was, so I could be praying for both of them, and I pointed back toward Jord, and got choked up and started crying as I said, "I know it's so much harder on you guys to watch us suffer." He managed to hold it together, but would you all be praying for Richard and Debra tomorrow? Also, pray that I can find out where the surgery might happen because I want to write a note to them and see if I can find him in the waiting room tomorrow to give it to him or at the very least, see if one of my nurses can find out what floor she's on and send a card that way. Moments like these are God ordained and His perfect timing...if we hadn't walked down at that exact moment and if his leg didn't have issues to where he needed to stop and take a break before walking out to the parking garage, we wouldn't have met. Jord called on his drive home and I told him about him and he said, "Yeah, he caught up to me in the elevator and said, 'I just talked to your wife in the hallway'." Jord wished he would have known cause he didn't say anything after that but there's just a silent bond there with a complete stranger as they both know what it's like to watch their beloved suffer, and it's one of the hardest things in this world. I'm crying now writing this....I'm so thankful for Jord and the beautiful gift of our marriage that God has blessed us with...the first time I almost died we had just celebrated our 6th anniversary (my steroid induced psychosis in December of 2010) and He saw fit to spare my life then, plus several others since then, and that's why our 20th anniversary celebration this past December in Nashville was so very special to us. As we walked down the hallway, hand in hand, with me pushing an IV pole, Jord joked, "Watch, we'll be 90 walking down these halls holding hands." to which I replied, "Except then you'll probably be pushing me in a wheelchair." and he said, "Well, by then everything will be electric so we can just zip around." He continues to make me smile and laugh even in the hard moments of saying goodbye.......We are hopeful that depending on what my pseudomonas is sensitive to that I might get to go home Thursday or Friday if I don't have my surgery Wednesday. If I do have my surgery Wednesday, then Friday could still be a potential, just depending on how I do. If the culture results show that my pseudo isn't sensitive to the antibiotic I'm currently on, then we'll have to add the "last resort" med that will make me dizzy, among other things. I have gone home on that one in the past, so depending if/when I have to start it, they will probably want to watch me for a few days and make sure I'm not having any serious unexpected reactions and then I can finish out at home, through my surgery on April 7th. My lungs hate anesthesia, so my guess is I'll be on IV through about a week after surgery. My RT should be here soon to do breathing treatments then I'm going to try and get a good nap to make up for the late night last night. Thanks for praying for Richard and Debra and for Jord and I. I don't know how people without Christ get through these moments...I'm so thankful that I'm never alone and neither is Jord and that just as God keeps me He is keeping Jord and One Day sin and all it's consequences will be done away with for all eternity! Come quickly Lord Jesus!
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